23 Responses

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  1. Cara
    Cara November 8, 2011 at 1:32 pm | | Reply

    This is a beautiful post. It’s scary and very much a fact of life when you live with type 1 diabetes. Thanks for writing this. I think it has pushed me to start on my next blog post.

  2. Lee Ann Thill
    Lee Ann Thill November 8, 2011 at 3:33 pm | | Reply

    I’ve lost count of all my severe lows. I had a few as a kid, three in my mid-20′s, and since 2008, I’ve been having several a year. I had my second seizure in the last month early this morning… LO mg/dL and 21 mg/dL. I’m always thankful my husband is there to give me glucagon, but had a terrifying incident over the summer when I was alone. If I hadn’t ripped my infusion set while I was unconscious and flailing, I likely wouldn’t be here. Every night I go to bed hoping I wake up in the morning, more so these last few years. It’s a scary to feel like the low monster could crawl out, grab you, and end your life every single night.

    Thanks for posting this, Victoria.

  3. Sarah
    Sarah November 8, 2011 at 3:54 pm | | Reply

    You go girl. I don’t think this could be said any better!

  4. Adam Starling
    Adam Starling November 8, 2011 at 4:33 pm | | Reply

    You are always in my thoughts WDV! I had no idea and just so you know, I read your stuff when I catch it! I miss you old friend and WAR DAMN EAGLE!!! Keep up the good work!

  5. John Serrano
    John Serrano November 8, 2011 at 6:47 pm | | Reply

    Great blog! Most folks don’t have a clue what Type 1′s and there families go through. I think you’ve painted a good picture. We love you and keep up the fight!

  6. Colleen
    Colleen November 8, 2011 at 6:48 pm | | Reply

    Fantastic post!
    Scary but I’m so glad you wrote all of it.

  7. Karen
    Karen November 8, 2011 at 9:00 pm | | Reply

    I want everyone to read this!

  8. Babscampbell
    Babscampbell November 8, 2011 at 10:05 pm | | Reply

    This is beautifully written Victoria. People just don’t understand the danger of diabetes. They see us “under control” throughout our day and don’t give it a second thought.
    When I was diagnosed with cancer this year, everyone stepped up to be a part of the journey. I had all kinds of help and emotional support. AND, every one of those people were just SHOCKED when I told them that I probably won’t die from cancer. I’m statistically, more likely to die from a hypoglycemic event. They had NO idea.
    Thanks for sharing your story and making it real. . not just a statistic. Hugs to you girl!

  9. Kerri.
    Kerri. November 8, 2011 at 10:24 pm | | Reply

    This post is amazing, Victoria. Thank you for every stitch of it.

  10. alexis
    alexis November 8, 2011 at 11:22 pm | | Reply

    I am sobbing. Every word is true. I type this, as I wait for J to come up from a low.

    I am so honored to advocate along side someone like you.

  11. PrincessLadyBug
    PrincessLadyBug November 9, 2011 at 12:27 am | | Reply

    I want to hug you so much right now. And I can only hope that doesn’t sound weird or scary. I love having my A1C back in a “good” range & feeling better because my blood sugars aren’t constantly running over 150. But the lows scare the daylights out of me. For the first time in my life, I know that I could be the 1 in 20. And that thought makes me panic. All I can say is thank goodness for the DOC.

    Now I’m going to share your blog on my Facebook & then go find some tissue. Be well & stay safe. :)

  12. Meagan
    Meagan November 9, 2011 at 6:59 am | | Reply

    This post touched my heart. I have had to be rescued from a seizure in the middle of the night by the paramedics. That night still haunts me. Thank you for this extremely well written post. I hope someday we never have to worry about dangerous lows again. xoxo

  13. Hope
    Hope November 9, 2011 at 9:33 am | | Reply

    Victoria you hit the nail on the head! You most def have been given the gift of writing. As a Mom of a type 1 I fear this every single day/night. I pray the FDA realizes the importance of this & every life it effects. Thank you for speaking out & being a voice for us all!! I love you & am SO proud of the woman you’ve become ❤

  14. Stacey D.
    Stacey D. November 9, 2011 at 10:26 am | | Reply

    What a way of saying what everyone needs to know. In the 29+ years of having diabetes, I’ve never had a seizure or lost conciousness and I feel very blessed about that. But that doesn’t mean I don’t think or fear that it can happen. Just this morning I had a low on my way to work where I felt my brain and limbs not functioning properly and was hoping, no praying, this wasn’t going to be the time. And I agree with you about the ad – I don’t think there was anything to be angry about either. I posted about it too: http://portablepancreasgirl.com/2011/11/07/my-two-cents/

  15. shannon
    shannon November 9, 2011 at 11:40 am | | Reply

    thank you for taking the time to share your thoughts and experiences in such a moving fashion. this is what i hoped to do with my blog before it devolved into posting pics of my kid and quoting 90′s movies. i have shared this post with everyone in my life i wish knew what it was like. thanks.

  16. George
    George November 9, 2011 at 11:49 am | | Reply

    There should be a post of the year award. So great.

  17. Matt
    Matt November 9, 2011 at 1:54 pm | | Reply

    Beautiful, poigniant and spot-on. It isn’t me with diabetes, it’s my 7 year-old, and I hug him a bit tighter, longer and harder every night at bed; no matter how diligent and involved and “perfect” with his treatment I *want* to be, I still fear I may wake to find my hero gone.

  18. Bernadette
    Bernadette November 9, 2011 at 2:23 pm | | Reply

    Thank you for the ad and the article. Please keep up the pressure to get some of the devices used in other countries available here. Type 1 Diabetics and their families and friends must raise the level of consciousness, get the word out the way other causes have.

  19. Hallie
    Hallie November 9, 2011 at 10:30 pm | | Reply

    Beautiful post! I’m teary… The future scares me. I worry about Sweets. I want her to be independent and yet I’m afraid for her. I pray that by the time she’s on her own we will have better technology. Or a cure would be nice, too! We’ve got 13 years…

    Thank you for sharing this. People don’t see those parts of life living with D. It’s that struggle between being normal and wanting others to get that it’s serious. You explain it so well!

    And thanks for the linky love!! :)

  20. Andrea
    Andrea November 10, 2011 at 11:22 pm | | Reply

    Thanks for posting…I have always wanted to write up something like that, but I too, am too busy making myself appear to be “just fine.” In fact I am far from it. I have an over-sensitivity to insulin, quite the opposite of most diabetics. I have had middle of the night seizures several times a month. Once I had two in one night! My husband works out of town much of the time, so I have my 12 year old daughter (also T1D) sleep with me. She has saved my life more times than I can even count. I have a CGM, and it alarms when I drop. The problem is, I don’t hear the alarm when I am 35 and still plummeting! Last year, I herniated a disc in my neck from a seizure and had neck surgery to repair it. This year, I have broken 2 different teeth in different seizures. I could go on and on. I am now just praying for the FDA to hurry up, so I can be sure I will be around.

  21. Julie
    Julie November 28, 2011 at 3:14 pm | | Reply

    I am reading this after having next to no sleep the last few days so that I can stay up and keep my 7 year old alive – she has been going low at night and we avoid trying to wake her up to shove carbs down her throat. I’m ready to hop a plane and buy the technology in one of these other countries and thumb my nose at the FDA . . .

  22. Liz
    Liz January 31, 2012 at 4:24 pm | | Reply

    Amazing post, ashamed to say only now have I came across it! What you say about those without diabetes don’t realise I touched on in my latest post, you put it brilliantly however. Thank you for saying what we all think :)

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Victoria Cumbow She Reads Truth Crazy Love by Francis Chan You Can Do This Project Diabetes Advocates Diabetes Social Media Advocacy Life for a Child Amazima Ministries Matt Chandler's sermons and book The War Eagle Reader (in)courage Annie Blogs Pete Wilson's blog and book Featured in Best of the 'Betes Blogs

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